Choice

Right now, its quiet. My boys are being typical teen agers, sleeping in every minute that they can while I am up rustling around getting things ready for our day. I choose to let them rest, since they will need all the strength they can get to push through the coming week. Today we are […]

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Why We Advocate

Today is the big day. We are off to Washington D.C.  We are leaving a few days early so that we can drive from our home in the Midwest to our nation’s capital. Yes- this will be a “fun” trip, we will stop and see a friend (or two) along the way, and try to […]

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SpeedZone LA

When my family travels to California, it’s not usually for the fun or the sun. For the last 3 years we have been commuting every few months for clinic at UCLA, but that’s a whole other story. The back and forth trips have been mostly about “business” but a few times we have been able […]

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The Journey

Life is a journey. The journey with chronic disease may take us to different places, but our experiences are what makes us who we are. Whether those experiences are from the perspective of the child going through the illness, or the caregiver who suffers their own trauma from the series of events, all have a […]

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Bouncing Off The Walls

Temperatures here in the Windy City are COLD as they are in much of the country. While lots of snow days have made for a series of pretty-as-a-postcard winter wonderland scenes, they have also been a challenge for a JA mom like myself. There are only so many movies you can watch, and only so […]

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The Olympic Spirit

It’s that time again- the Winter Olympics! Four years ago, during the last Olympics, my older son and I were stuck in a hospital room watching the athletes compete in the wee hours of the morning after being admitted on Superbowl Sunday. While we have had a rough go on many of the Superbowl Sundays […]

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