Juvenile Arthritis Conference-Day 3 Action Packed!

Day three of the conference, and we are just settling into our groove, breakfast and general sessions in the morning, breakout groups in the afternoon. It’s a full day all by itself, with 4 sessions spread through the day to explore topics of your choosing. I am really glad that I have (and made) friends […]

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Juvenile Arthritis Conference-Day 2, Down to Business

Day two started bright at early with a continental breakfast where we had the opportunity to sit with old and new friends. We also picked up our vouchers for the Razor scooters, t-shirts, Disney tickets and gift cards to use in the park. Then we got down to business. We found out some very exciting information in […]

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Juvenile Arthritis Conference Day 1- Wish You Were Here!

Here we are, finally at the Juvenile Arthritis Conference after months of anticipation. Why were we so excited? After all, its just a conference, full of boring informational meetings, right? WRONG! The Juvenile Arthritis Conference is a collection of very informative speakers and sessions, but it is so much more. Last night at the opening dinner, there […]

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An open note from JA families to others PART TWO: What we would LOVE to hear….

I had an overwhelming response from the “What NOT to say” post, with many requests for a follow up to tell friends and family what they should say to JA families. In just a few short weeks, you can read all about it in my book “Living With Juvenile Arthritis:A Parent’s Guide,” but I decided […]

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An open note from JA families to others: What NOT to say….

I am involved with many online support groups and JA communities. This has been a hot topic lately, and is always a topic of conversation with the newly initiated families. As we were reeling from the gravity of our children’s diagnoses, the things that were said to us really threw us for a loop. Admittedly, […]

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Gearing up for the 2013 Juvenile Arthritis Conference- Join us WHEREVER you are!

In “Living with Juvenile Arthritis: A Parent’s Guide,” I talk about the importance of connecting with other JA families. Your non-JA friends and family members can be a great source of support, but there is something different about the support you receive from folks that are going through the same things that you are!  A […]

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