Growing Up

As my own children are getting older, transitioning from kids teens, I have been watching them grow and change. I know that soon they will transition to young adulthood, and take on an even greater role in the management of their own disease. Its part of growing up, and I know that day is coming, […]

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The Journey

Life is a journey. The journey with chronic disease may take us to different places, but our experiences are what makes us who we are. Whether those experiences are from the perspective of the child going through the illness, or the caregiver who suffers their own trauma from the series of events, all have a […]

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Bouncing Off The Walls

Temperatures here in the Windy City are COLD as they are in much of the country. While lots of snow days have made for a series of pretty-as-a-postcard winter wonderland scenes, they have also been a challenge for a JA mom like myself. There are only so many movies you can watch, and only so […]

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The Olympic Spirit

It’s that time again- the Winter Olympics! Four years ago, during the last Olympics, my older son and I were stuck in a hospital room watching the athletes compete in the wee hours of the morning after being admitted on Superbowl Sunday. While we have had a rough go on many of the Superbowl Sundays […]

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Monsters

Admit it, you know EXACTLY what I am talking about….those monsters. Formerly known as your children, but grumpy and grouchy… transformed by too many days cooped up in the house ( thank you sub freezing temps and snow that won’t quit,) ¬†by the inability to do lots of the things they would like to do […]

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Tricky, Tricky!

Moms (and dads) are a lot of things. We are caretakers, disciplinarians, chauffeurs, cooks, tutors, playmates/friends, negotiators. We are loving, we are kind (hopefully), we are responsible and tricky. Wait, what? Yes, I said it. Sometimes we are tricky, tricky, tricky. We have to be! Kids can be crafty, so sometimes, we have to beat […]

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